The HOUSTON'S: October

Halloween. Nadia wanted to be a fairy. She picked out her own costume,tried it on, and got very mad because she could not fly! She was convinced that once she got her costume on she would be able to fly like a fairy! Sweet innocent children! We must go to Disney World before she gets much older!

VCFS/DiGeorge Syndrome/22q11.2 deletion

Maile, our oldest child, was diagnosed with DiGeorge syndrome shortly after she was born. The syndrome manifests itself in many ways, including heart defects, eating problems, and low muscle tone. Shortly after she turned 6 she was also diagnosed with “severe autism”. For anyone who knew Maile this was not a shock. Getting the diagnosis was much harder than it should have been. With all of the media attention surrounding autism, I won’t say more about that now. I do want to leave a web site for the Velo-Cardio-Facial-Syndrome Education Foundation (VCFSEF). VCFS is the current PC term for DiGeorge syndrome. To learn more about VCFS visit www.vcfsef.org